We are an all volunteer-led charity, supporting M.E/Chronic Fatigue Syndrome, Fibromyalgia and Long Covid patients through self-help initiatives. We continue to actively campaign for a Northern Ireland, NHS Consultant led, ME (Myalgic Encephomyelitis) service and work in partnership with the healthcare sector to provide awareness and educational projects for patients and their healthcare providers.
Services:
- Monthly support meetings (Zoom) held on the 1st Tuesday of each month 7.00 – 8.30pm, with guest speakers. Free to members, small fee via Eventbrite non-members)
- Annual Conferences with international researchers and leading experts in ME & Fibromyalgia
- Patient’s Facebook Group (open to all, 24/7 admin) for peer-support, fellowship, self-help tips, awareness and education.
- Parent’s FaceBook Page – Coming Soon
- Special Announcements Facebook Page for sharing global research news etc.
- Weekly (Zoom) guided meditation and breathing classes, Craft Classes, Coffee & Chat group for members.
- Self-help booklets, written for patients, by patients!
- Encouraging patients to share skills, build confidence by volunteering to help others.
- Fundraising to support all above activities and towards biomedical research projects.
- Self-help group – New face to face meetings starting in Lurgan on 22nd September
- Awareness & education
Referral:
- By Phone, Call or Text (Mon to Fri Afternoons only)
- Via Email
- Via Facebook message
- Through GP and surgery Multidisciplinary Teams
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