Northern Ireland Rare Disease Partnership brings together those living with a rare disease and organisations representing them; clinicians and other health professionals; researchers and producers of specialist medicines and equipment; health policymakers and academics. We aim to work constructively with stakeholders and service delivery organisations to find practical ways of improving the quality of life, treatment and care for those with rare diseases in Northern Ireland.
Services
- Support Groups
- Advocacy & Education
- Healthcare Support
Referral:
- By email
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